Thursday, 11 February 2016

Good time to say thank you

This episode has been written in 2 instalments. The first was written shortly after I was CT scanned for the second time. I have been on my present drug regime since christmas day. This second scan was to check whether Afatinib was having any effect on my consignment of tumours. It was a tense week, bowel problems may not have been just a side effect of the drug.
I will start bang up to date. With the news, the good news, in fact with the fucking magically good news.
On Tuesday evening Clare and I were back at Ninewells for another meeting with Dr Lord, my oncologist. It was late in the afternoon, perhaps her last appointment of the day. Just as last time she had the pictures on her computer screen. This time there were 2 sets of slides for comparison purposes; November and February.
My hopes, well apart from the vain hope that i had flung myself into the fireplace and been instantaneously transported via the flue network to Madame Pomfrey at Hogwarts. In this particular dream she taps me gently on head, chest (and although I haven't yet mentioned the hole in the bone in my upper arm) and shoulder. She mutters the ancient incantation carcinoma fucoffita; I confess the profanity surprised me too. In this tale all trace of non-small cell carcinoma has vanished.
Back to my real life hopes. All I really hoped for was that the tumours would have stopped growing, that Dr Lord would take this small effect, and my blooming good health as a good enough reason to carry on with the drug for another couple of months to give it more chance to take effect.

Well the truth is so much better than that. Not quite Hogwarts, but all the tumours have shrunk, many by 50% some by more, even my arm bone (yes, the one connected to my shoulder bone) now looks as if it is actively healing.

What does this mean, I hear you call?

Buggered if I know. This is a brand new drug. Had I developed this cancer 5 years ago I might have been well one my way to a spot of pushing up of daisies. 
In trials its effects have been variable. Occasionally it has failed to work, then on other patients it has started promisingly then the effect has petered out.

None of that matters. What is important is that the initial effects have been spectacular. I am feeling very fit, my side effects are negligible and my optimism undimmed. 

National Cancer day was on 4th February and is particularly important to me this year.

I was assaulted by a cancer that sneaked in without symptoms and was found by accident as my head was CT scanned looking for evidence of a mini stroke. This is unusual. Most cancers arrive with changes or symptoms. If you find those early chances of recovery or remission are much higher. There is a lot you can do.
Feel your bollocks, your breasts (it may be more fun examining each others but remember in this case you are looking for lumps or other changes).
There are several screening services. One in particular that I have been ignoring for several years are these little cards the NHS sends so we can smear them with shit which can be tested for bowel cancer. Don't do as I have done, SMEAR AND SEND BACK, this test could save our lives.

As well as our vigilance money is key to fighting cancer.

All of us can look for ways to help to fund cancer research bit by bit scientists are learning the secrets which will help to cure the many cancers which attack us.
MacMillan cancer support does wonderful work in helping those who are losing the fight against these horrible diseases. My mum and dad had their last months eased by the care and love given by Macmillan nurses. These wonderful people give up their time for far too little money to help those fighting cancer. Our money is always needed here and will never being wasted.

But if, like me, you find yourself sitting in an anonymous doctor's office on some random Thursday afternoon and the clocks stop as you hear a young doctor utter the woeful word 
'tumour' perhaps qualified with the strange adjective 'metastasising' then you don't need research, nor are you quite ready for palliative care.
What you need is the help of the cleverest, most dedicated doctors, nurses, porters and radiographers, all the skills that go to make up a modern health service.
The men and women who will comfort your confusion and grief at this horrifically abnormal diagnosis and in their skill and dedication try to find you a way through.
The other thing you don't want to be told is that there is an eyewateringly expensive drug which might just save your life but then having to go to your insurance company and ask them to fund it. Be assured they will go through their policy and your history looking for loopholes; for your pre-existing conditions, at the fine print in your policy anything that will allow them to step aside and send you to the least cost possibly palliative option.

If you need me to tell you how important the NHS is then you are probably in the wrong blog. 

So my thanks are due not only to those of you who have read this blog and offered personal support. I also thank the NHS staff, both those I have met and those who labour behind the scenes to keep our medical services going. Lastly and perhaps most of all I thank all who have helped to pay for my eyewateringly expensive drug. That includes pretty much everyone in the British tax system. Some better off than me, many more much worse off. My wish is that I live long enough so that my taxes contribute to your treatment.

2 comments:

  1. Fantastic news Donald, long may the drug continue to do its stuff... and your taxes have contributed to my treatment..Thank you!

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  2. Whenever Jimmy has a rant about his tax contribution, ( now he's a grumpy old man this happens a lot) I remind him of our premature baby, now a healthy 24year old and our type 1 diabetic son surviving on a lifetime supply on insulin and the benefits from ongoing research. Now I can add you to the list too!

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