Friday 17 February 2017

.................................fuck!

I have never been a believer (actually you could probably leave that statement right there but I was going to go on to talk about analysing dreams) that dreams mean much, but...
The other week I had a dream about living in a house with a pet tiger. Our hosts (definitely not home although Clare was there and children and grandchildren put in appearences) repeatedly assured us that the tiger was friendly, in many ways an ideal pet.
And it was a strange tiger. One minute is was large and realistic growling over us, the next it was Disnefied, Tigger on a high windowsill.
It is tempting to see similarities between my dream tiger and the tumour lurking in my lungs (Metastasia?) along with its babies.

Only if we are to pursue the analogy the results of my last scan suggest that Metastasia is no Tigger but a big hungry brute with huge teeth and big scary claws.

The bad news, and to be honest last weeks meeting with my new oncologist, Dr Adamson, brought little but bad news is that...
The days of Afatinib are past. The tumours have developed immunity to Afatinib and are actively growing again and presumably breeding too. Words can be slippery things.  We now realise that when we spoke and wrote about WONDER drug we underestimated the seriousness of my condition. The wonder is that it has given me 14 months of rude good health
Thursday's meeting brought only the offer of a two drug chemotherapy regime which often shrinks the tumour. The treatment would be more invasive than I have been used to and the results in the short term, less certain.
Somewhere ahead there are serious decisions to be made regarding the balance between length of survival and quality of life.

That meeting was on Thursday. The weekend was spent in our favourite refuge; with Nikki and Elt and the kids. A good place to lick our wounds and restore our sense of perspective. It isn't completely certain that this was helped by a Friday night with added rum, nor by Scotland's eyewateringly physical defeat in Paris (and if the sport isn't immediately clear you haven't been reading carefully enough, keep up)
On the plus side Ben and Carly joined us, there was a wee chat with IJ about Gramps' lumps and of course a Sunday morning with the kids at Lego Batman.

Monday brought renewed optimism.
It was announced by the Scottish Government that the next generation drug for treating my sort of non small cell lung cancer had been approved.
By 9.30 I had been contacted by Ninewells to confirm that if the mutation on my tumours has the appropriate mutation I will be approved for Osimertinib treatment.
Before that I need another tumour biopsy. There is a little more than a 50:50  chance that it is suitable.
So, at 1.45 on Monday I will be sitting or lying in a room in Ninewells stoned (I think the official term is sedated but I know how I felt last time) waiting for a whiteclad doctor to stick a stainless steel tune into my lung to sample Metastasia.
I suspect that I will be hoping that my retch reflex will be more controlled and my doctor more sympathetic than last time.

More news when I have it.

In the meantime BLESS YOU NHS. Remember the NHS is not failing it is seriously underfunded by our present government.