Wednesday 30 December 2015

Angry and ungrateful

It's been a while.
And not because nothing has been happening.
We have had the biennial Endean Christmas extravaganza. Clare's brothers and sisters, their partners and children. This year we all found space to sleep in the house. Just a typical family Christmas. 17 sleeping in the house. Adults who stay up till 3am playing cards and children who like to be up by 7 to start the new day. Sugar rush v alcohol poisoning.
It all came to an end on Monday morning after a Sunday evening of curry, Stabco, wine, more beer, singing, cocktails and much more singing.
Christmas Day was also my introduction to Afatinib. Wonder drug?
Time will tell.
When I came home from Ninewells I had a modest box with the main feature but then half a dozen boxes to cover side effects. 5 days in now and the first side effect has slipped in, or out rather. Imodium seems to be doing the trick.
Still waiting for skin rashes etc.

None of this explains the title of today's epistle.

The responses to what I have written so far have given me a strange odour of sanctity. Inspirational, brave, sensitive. Lovely complements but not really me.
I am still exactly the same grumpy, cantankerous, dull middle aged man who drinks too much and tries to remember not to write controversial emails after a bottle of red late in the evening.
What my diagnosis has robbed the whole family of is normality and me of independence and perhaps a little time.
It is hard at my age to admit that your teenage children were right all along. Kilduncan is a tricky place to live when you can't drive.
On of my listening joys for many years has been Kermode and Mayo's film review. I am a fully paid up member of the church of Wittertainment. I strongly recommend this to anyone with even the most limited interest in movies. What could be more interesting than spending 2 and a half hours each week listening to 2 middle aged men squabbling about films?
Their relevance to this piece is that there is a standing joke which started when Mark Kermode asked how to set up Snapchat. The answer was that you just set up Snapchat.
So clearly the answer to the question how do the Peddie/Foister/Squires family bring back normality to their lives is... They bring back normality to their lives.

I admit that this works better as a smart remark than as plan, a bit of a recurring theme in my life.

The key is the future. We need to embrace it, plan for it, enjoy it. There are children and grandchildren to enjoy and admire. There is a business to run and to plan for, perhaps new opportunities and challenges. There is fun to be had and memories to be made.

But first there is a trip to Paris.

Friday 18 December 2015

The Force Awakens

Do you see what I did there? Straight on the bandwagon! However in my case space travel and light sabres seem unlikely. There is probably plenty of the dark side lurking in my head and chest to require quite an impressive force.
The force I will put my faith in is our NHS. Science, commitment, hard work and limitless goodwill are powerful allies and I have seen all of these things in abundance since I started this process.

Before I go on. There was a story in yesterday's news that more and more NHS trusts are falling into deficit. What is actually happening is that they are underfunded. Our nation, one of the wealthiest on the planet, is choosing to put possibly the greatest health service in the world at risk in the name of some dubious 'austerity' budgeting.
Look around. We are spending money in huge quantity. Bomb Syrian civilians, no problem here is a blank cheque (and look, armaments shares have risen, result!)
£167 billion to put nuclear weapons in submarines. No problem, national prestige demands it.
No, it won't actually help fight terrorism and no, if Trump becomes US president and we can no longer look for friends in the west neither can we point the things west. Or probably anywhere without US permission.
Enough of a rant, but if someone tries to tell you that what the NHS needs to improve is less money please don't believe them. The task of government is to calculate how much money their public services need and to find that money. If efficiency savings can be made, brilliant but you can't find efficiency savings by imposing blanket 3% per annum cuts. And if your policy relies on driving the incomes of medical and other staff to poverty levels. Think again.

Some slightly better news this week. We had an appointment with an oncologist, Dr Lord at Ninewells hospital. This came with the result of a final test.
In lung cancer patients who have never smoked there is an increased chance that the cancer is caused by a specific genetic change. This was the final test whose results we got on Tuesday. My cancer is in this category.
What this means in practical terms is that the outcome may be a little better but that the drug I need to take, Afatinib, strictly speaking a biological control rather than chemotherapy, is taken as a daily tablet rather than intravenously. The side effects while still present are less severe. Scoots and plooks basically. Not necessarily much longer life but hopefully more of that in decent health.
Next appointment is on Christmas Eve when we will get the drugs. Then the process begins...

Pip and Great Expectations came back into my life this morning. Not in this case the much read and much loved classic. PIP in this case is a Personal Independence Payment and my expectations are limited to £82 per week. But all in all not a bad first step into our nations Benefit system.

After my last post I have done a bit of thinking about bravery. I think true bravery needs a choice to be made to risk life or limb. Fire fighters going into burning buildings, police officers confronting armed criminals or military personnel putting themseloves in harms way all rely on training and bravery to carry out their duties.
I can give another example of courage from my own family.
When we were small mum and dad had a photograph of a little girl hanging on the wall of their bedroom. I don't remember being told but we knew that she was our big sister and that she had died as a young child.
Over the years we learned more detail but very little of it from mum and dad.
Alison was 3 when she was killed in a hay fire in a shed at Ratho Mains in Midlothian on Easter Sunday 1957. By one of the coincidences that happen so often the farm is now owned by close friends of mine. In 1957 it was owned by equally close friends of mum and dad. Alison was outside with a slightly older child. A fire started and she was killed.
So far so tragic. The bravery came later.
I think the death almost broke mum, dad dealt with the decision by throwing himself into work. I don't doubt his bravery but it is mum's I want to talk about.
She was left with a gaping hole in her life and an eleven month old son, Donald.
Her bravery lay in the decision she now made. She and dad had three more children. But they barely shared their sadness with us. We knew she hated us playing with fire but not why.
And she filled Coal Farm with love. Having lost her daughter she made it a special place for her nieces of about the same age. As we boys grew older she chose to give us childhoods completely unburdened with her tragedy.
For my 40th birthday she gave me a wee photo album among all the fading photos of a gawky boy growing up was one little black and white picture of a toddler, a wee girl, about the age Daisy is now. She is looking into a pram containing a baby. The caption reads "you and your sister, who loved you".
True unselfish courage over most of a life.

Monday 14 December 2015

TheThane of Cawdor lives...

An enigmatic title, and you may have to do a little research to find the precise quote I am thinking of. I could offer you my copy of The Norton Shakespeare, about half a hundred weight of literary genius, and a souvenir of my years of Open University study. In the end I didn't come out with a degree, mostly because I discovered that child rearing was rather more rewarding and much more immediate than studying the humanities.
Every course I studied gave me a new work of which I was previously ignorant but which has enriched my life since. In the case of Bill the Bard I got the poetry. The 1996 movie based on a Royal Shakespeare Company production did it for A Midsummer Nights Dream. Richard II was the other play that blew me away. I saw it twice at The Globe in London in 2003 with Mark Rylance as Richard. Theatre, actor, rest of cast, production. All wonderful (I realise I use that word too much, sorry if I am sounding like Pollyanna or perhaps since I am being arty farty, Candide).

A better title might have been 'Why blog'.

When episode one came out I thought I was doing it so that friends could read about my condition and when we met or spoke we wouldn't have to waste time on the illness and could immediately chat about the things that had made us friends in the first place, although in many cases we have been friends for so long that the beginning is lost in history.
Things have moved on and I have discovered many other, possibly more selfish reasons.
And yes VANITY is right up there. I confess that I do study the numbers. To find that well over a thousand people looked at the last episode gave me a huge kick (mathematically it might have been a hundred people looking 10 times each but that might actually be better).
That so many of you took the time to like, share and comment was humbling. Many of you spoke about my bravery, not a word that has often been associated with me in the last 60 years, and not quite accurate in this case but I will come back to it. Perhaps not today, space is limited and I do need to get to TUMOUR TOURETTES.
I have also discovered that blogging is a highly therapeutic exercise. I have never slept all that long at night. This may shock people who have seen me sleep for Scotland in licensed premises after a tube or two of wine gums.
I don't class myself as an insomniac, I have radio and earphones set up to listen to and I assume that if I was tired I would be asleep. In the last month rather than think about the illness I have been able to think about what I would write about it. The difference doesn't sound much but actually it puts everything in the third person and clears a space round about me.
A final reason to blog is that it allows me to blot out the large heap of egg based paperwork I should be grafting over right now! Displacement activity!

Rage has a place in my predicament. Not against the condition. That is nobody's fault, I have no supernatural entity to blame or to beg to.
No, my rage expresses itself in what Clare has christened TUMOUR TOURETTES. It takes the form of an increasing level of intolerance aimed at what I see as intolerance. There are many expletives, the occasional stomping out of rooms, with or without door slamming.
What, you may well ask, ignites this extraordinary behaviour? A short list follows:

The British Government and its policies or at least any policy which involves wealth redistribution from the poor or the disabled or the merely feckless to the 24% of our population  who had the bad taste to vote for them. You were wrong!
And did I mention their decision to move away from renewable energy to gas and nuclear (almost certainly pronounced nucular round the cabinet table).
Or the decision after watching the hideous waste of life at the Bataclan where France wisely didn't institute airstrikes in Paris to clinically take out the terrorists, to start these airstrikes on Syria where the dead civilians could be renamed collateral damage.
Or the bloody Daily Mail, and don't get me started on the US Republican Party presidential candidates. AND BLOODY DONALD TRUMP AND WHO THE HELL IS KATIE HOPKINS.

and breathe.

Friday 11 December 2015

Squeaky bum time

I have been toying with  'mountain to climb' metaphor to explain the outcome of my meeting yesterday. Let's try is again to see how far it takes us.
There is indeed a mountain, a big one. We can't go under it, we can't go round it, we have to go over it (with apologies to Michael Rosen). The road which we will start on is narrow and steep and we can't see how far it goes. And there are more mountains beyond this big one. Lots.
That, I think is why metaphor and analogy should be left to skilled writers who can make their meanings quite clear.
Fortunately our meeting with Carol Connolly, a Macmillan Cancer Nurse Specialist at the Victoria Hospital in Kirkcaldy gave us a wonderful example of how to talk 2 frightened people through news they never wanted to hear and were barely prepared to listen to.
The facts then.
I have a sizeable tumour in my right lung. This has metastisised not only into the pleura (the membrane surrounding the lungs) but into my brain. Twice. These tumours in my brain caused my initial black out and the demise of Ben's Fiesta.
There are too many tumours for surgery or radiotherapy to be viable options. There are chemotherapy options.
We have a name for the condition. It is a non-small cell lung cancer and the cell type is adenocarcinoma. This is not as fast growing as the small cell type. But that is just about the limit of the good news.
There is no chance of a cure or of remission (although the latter word was never mentioned).
The chemotherapy treatments I am likely to be offered elicit 3 levels of response.
In one third of patients the tumours shrink significantly. In another third they stop growing. In the final third there is little effect on the growth of the tumour.
When I spoke about the irony of someone who has never smoked being afflicted with lung cancer Carol told us about a final test which has been done but for which no results are available yet. This cancer can be the result of a mutation (not a genetic defect you are born with) but only in 5-10% of sufferers. This would be treated with tablets rather than intravenously. The rate of success is slightly higher if this happens.
Our next step is to meet with an oncologist at Ninewells in Dundee. She is likely to offer 2 courses of chemo initially, this would cover around 6 weeks. After that it depends on how effective the treatment is proving and how well my health is standing up.

The meeting wasn't the hardest part of the day. Nicci, Elton, James and Ben had to be told.
I can honestly say I have never been prouder of our children or loved them more. There were tears but there was also laughter. If I have done nothing else worthwhile with my life I have helped Clare to raise a family who will cope with whatever the next year brings with courage and good humour.

It may be that I can offer some advice n how best to approach the tumour studded grumpy old git.

My views on people have become more extreme. If I liked you before then I will almost certainly like you even more now, but I am more likely to say so. I am likely to laugh and hug you. If you are particularly nice to me I may cry. This is not a problem but may result in extended hugging.
I think we need to talk about man hugs. Many of us find these awkward. This simply means we need more practise, it will get easier.
Now we have hugged and said hello what should we talk about?

Almost anything, is the short answer. I am happy to talk about my condition and I will do my utmost not to make anyone feel uncomfortable. Talking about other peoples cancers with successful or unsuccessful outcomes is tricky but I will cope. We may need another hug though.
Talking about the past is perfect. I am having a lovely life and will be happy to tell you the same 3 stories I have been telling you for the past 30 or 40 years and to hear yours.
Talking about the future is also perfect. My own future may be uncertain but I can still feel joy in hearing about your plans, your hopes for yourself or your children or the chances of Scotland winning the Six Nations any time soon (anyone with connections at Murrayfield might mention that this season would be good).
I can even handle religion. If someone I love and respect offers me prayers i am happy to accept them. The deal I ask is that you don't try to convert me. In exchange I won't try to convert you. We can even have that discussion. But in front of a roaring fire with a glass of malt in hand.


I do have to warn you about what the family have christened


Wednesday 9 December 2015

Home and thoughtful

It has been a strange five weeks. But by no means the worst.
At present of course I have no idea what the future holds. I know there is cancer, and metastasising. But they are just words which don't really have any reality.
I was asked this week whether I liked to talk about the word cancer. 
I think it is important. I feel pretty much like Harry Potter talking about Voldemort. Reality is scary enough without wrapping it in fear and ignorance. By the end of this week we will have a better name. Tom Riddle may be a clever little bastard but a human foe. If the diagnosis we get is lung cancer, which seems possible, the irony is huge for someone whose ability to inhale tobacco smoke was so limited that when he bought a joint in a coffee shop in Amsterdam his wife had to smoke it for him. Riddikulus.
How do I feel then?
It is now Wednesday lunch time. Tomorrow morning in Kirkcaldy will tell me a lot about my immediate future. I am unusually optimistic but I have to keep alive the knowledge that the news may not be what we hope for. The shock otherwise would be too much.
So I feel good. Not working very hard but I almost have the business ready to sail on without me till I am fit enough to climb back into my white van. I am eating like a pig and drinking a little more beer than is strictly necessary to wash it down. There may come a time when I feel like neither and I might be glad of the half a stone I have put on.
I have always admired the epitaph Paul Edington, most famous for Yes Minister, chose "He did very little harm" may seem unambitious but few of us can achieve it. Of course I have never been rich in personal ambition.
There is a guilt in the knowledge that my illness is hurting those around me. Not the fierce guilt that I have done something wrong and can change anything but the constant knowledge that by behaving well I can make it easier for them. They of course make it easy to behave well. I have managed somehow to surround myself with a marvellous group of family and friends.
You have probably realised that I am fond of rugby. This is largely because of the teams that it builds. Groups of young people who work very hard together and who learn to look after each other in physical danger and in the almost equally dangerous social life that surrounds it. It builds friendships which last lifetimes.
My rugby credentials are largely fraudulent. In 1972 I became one of the skinniest and least skilled players ever to play second row for the Strathallan School 6th XV. That I played the match despite a severe back sprain, and contributed even less than my limited skill set would have allowed, suggests that I had entirely missed the whole teamwork ethic.
True but since then I have had good teachers.
James and Ben have both gained from playing the game. This would be a good moment to mention that James captained Rob Dewey in the Madras College 3rd year XV. Ben's pride when he unearthed this little remembered fact in the school's online archive was heart warming.
The family and friends around me now give me the same sense of confident reassurance.
There is a second source of guilt.
Since I have learned about my problem many many people have told or reminded me that someone close to them has had similar health problems. Now that I realise how important it has been to me that those I care for react to my news by coming towards me and talking I feel bad that I have not been as good a friend as I could have been to others.
Don't worry about saying the wrong thing. I reserve the right to laugh or hug randomly but will be grateful.
Hmm, not to many laughs today so I will leave you with a vignette from a Belfast Saturday night, or more accurately Sunday morning.
Mr Peddie, after enjoying a very fine Indian meal washed down with good company and lashings of, well not ginger beer, but Cabernet Sauvignon. (Enid Blyton reference, sorry it's my age and upbringing.), insisted that the assembled company reassemble in the Errigle pub where a very fine Jaipur IPA was being served.
Around 1.30am even I had had enough and had retired to bed in that fully clothed flat out on back pose so beloved of wives and so certain to ensure maximum snoring. Significantly I also had my glasses on.
About an hour later I revived briefly. As always my first act on waking was to put my specs on. As you may recall I already had mine on, so the pair I found were Clare's. She was woken by a noisy man wearing 2 pairs of glasses complaining loudly that he couldn't see his phone properly to find out what time it was. (2.30 I am reliably informed)
Enough? I will be back with hard news in a day or two.

Saturday 5 December 2015

Laughter, the best medicine

Well perhaps not, and my next NHS appointment may suggest more effective remedies, but a weekend in Belfast with good friends, full of laughter, is a tonic.
The weekend of course is not over. I am sitting in a comfortable hotel room feeling mellow with Clare, it is not quite half past eleven on a Saturday morning. I am feeling insufferably smug.
A good deal of booze was consumed over many hours yesterday, much but not all was Guinness, but spread out over 12 hours was mellow in rather than disabling.
I made 2 good decisions. Those who have followed my social career over the decades will realise that this is pretty much a record, particularly in my late career in rugby touring.
First I decided to forswear bevvy during the Ulster Edinburgh match last evening at Ravenhill. The result and the quality of rugby played by Edinburgh, particularly in the last 10 minutes did make me question this decision, and I did have a couple of pints of lager ( not one of my best decisions) and a glass of wine after. 
Second and even wiser I skipped the final pub and went back to the hotel for a final nightcap with Clare. Our final pub was Horatio Todd. First impressions were not favourable. 6 taps, all nearly a metre tall, OF LAGER. The beer snob in me recoiled in dismay. Who could possibly need six different lagers. (I confess that at 11 in the evening after 12 hours of steady swilling NEED is probably not the right word). That there was also loud music and dancing helped me in my road to enlightenment.
Breakfast this morning was a guilty pleasure. It was really good, which helped, but the appearance of friends in the full majesty of the after effects of Horatio Todds till 2am did induce insufferable feelings of smugness. (We are perhaps thinking along the lines of watercolours where paint is a little scarce and water plentiful).

We are here for a 50th birthday party for Stephen Stewart. Talented rugby player in his youth, enthusiastic and inspirational youth rugby coach more recently, unfailing defender of the on field and off field traditions of rugby on tour and at home. Also often a grumpy old sod but the kind of friend who looks for you if he thinks things are tough.
The poor man has had a miserable week waiting for his long suffering wife Karen to organise his surprise 50th party. After a week of shattered expectations he was eventually brought to the Crown in Belfast city centre. 
The Crown is a wonderful old pub full of dark wood and Victorian coloured glass with local staff in proper black white uniforms. And it is ringed by private booths. 
In one of those, just after 2pm yesterday were seated 9 close friends of the Stewart family. The surprise was complete. He didn't collapse in paroxysms of delight but for almost 15 minutes he was almost completely silent. In the 10 or so years I have known him this is the longest period of waking silence (he shares with me a tendency to snooze in the evening when beer has flowed generously) I have known.
Belfast is also a delight. Such friendly people and a real buzz of excitement and optimism.

Anyway here I am. Happy and as healthy as someone with my outlook can be. 2 more days in Belfast. There may be more to say...

Oh, and I haven't mentioned Elton.
Fathers traditionally dread the day that their daughter brings home some entirely unsuitable spotty youth and announces that he is the only man for them. 
Nicci may have known her share of those spotty youths but the man who she has chosen is the one that paternal dreams are made of.
Hard worker, good company, thoughtful, domestic. For goodness sake the man loves (and brews) craft beer and fine old malts and is happy to round off a good meal with cheese and port.
What more could a father in law look for in a son?
2 grandchildren would be the only answer to that. I do have a favourite: the one who is hugging me at any moment.
Well, I promised to embarrass my family. My work here is done. 
Hope you enjoy this weekend as much as I will, speak soon.


Tuesday 1 December 2015

Contentment

In one of the many conversations I have had with old friends in the last couple of weeks I have only been asked once if there is anything I would like to have done differently. I thought, perhaps for too long, and he broke the silence by saying "you must be contented".
I can't argue with that. Certainly it would be hard to argue against the suggestion that I am one of the luckiest beggars I know. I have a good brain, which I don't use as much as I should. I can stand up and make a decent speech with reasonable aplomb. Occasionally I really make an effort and make a good speech.
The eulogy at mum's funeral was one case, although I didn't really realise the most important thing I wanted to say until I came to the end of what I had prepared. It was about love and hospitality and I still don't know if I did her justice.
Clare of course is the heart of my contentment. She brought with her two wonderful children. I can't claim much credit for the way they have turned out. They had the best mother they could have wished for, and a father who was keen to be involved. In fact throughout our courtship (is that still a word) they went to their dad most weekends allowing Clare and I the joy of children through the week and single hood at weekends.
If I have a regret about them it is that I am stepfather and not father. I was Donald and not dad, although the times where 'dad' came out were remembered and treasured.
Then of course there was Nicci's wedding day. I guess that day told me more about pride and fatherhood than any other. Kilduncan looked better than ever before or since (much of this due to James and his efforts to make the place look good.). The company from the smallest child to the oldest grandparent had fun.
Somehow Donald failed to get drunk and make an arse of himself. And around about 3am the disco was coming to an end. There were 2 still standing. The last dance was Mr and Mrs Peddie with Eric Clapton supplying the music. Wonderful moment.
And then there is Ben. Clare went back to work when he was 6 months old and I became main carer. Now actually, in the way that men and women assess their roles in relationships , I strongly suspect that all this means is that I did my fair share of childcare. It was the greatest gift I have been given. Watching Ben grow from toddler to manhood has been an unalloyed joy.
That's probably enough embarrassing the kids for one posting although I don't promise not to return to the subject.
I will just finish with one final lesson Ben's company taught me.
I had a brief flowering as a youth rugby manager. After too long standing on the touch line enjoying the sport and a few beers I actually put my hand up and helped to organise the club. The summit of this was Ben and I organising a 16 team under 18 sevens tournament. Perhaps if we knew the problems to be overcome we might not have started. But we did and I am pretty proud of our achievement.
What it taught me, though, was rather different. Perhaps most of you already know this but it took me till way after my 50th birthday to learn.
If you stand on the touch line you have a great opportunity to have a beer but if you get involved and make an effort you can drink that beer with friends (and there is usually more of it).
OK, I'm getting maudlin, humour me.
My health? Still looking and feeling fit. Still on the same 3 drugs to stop me having woo woo fits. They work!
Body thoroughly scanned and biopsied.
And now an appointment for a 'nurse led results clinic'. Next Thursday, 10th December.
Then perhaps the phoney war is over and we can start to look for the road to recovery.

Friday 27 November 2015

Short notice

At 5.30 last evening my phone rang and a strange number appeared on the display. A doctor spoke.
' we need to take a sample from one of the suspicious shadows from your CT scan'. Can you be in Kirkcaldy for 8.30 tomorrow morning?
There only seemed to be one possible answer, so after a call to Clare's work. And the help they have given us to adjust Clare's diary has been immense, there we were at the entrance to the endoscopy suite bang on 8.30 this morning.
Another calm, confident, competent nurse met us. She was even prepared to smile when I suggested to Clare that she was just dropping me with a beautiful woman to do some drugs. Too much humour I think.
Questionnaire filled in, another cannula painlessly inserted, a little waiting and I was ready to meet my first consultant in this process.
But first the drugs. A good armful of Valium. Then a good deal of explanation about the procedure. Lots of info about anaesthetic gel up a nostril and a variety of tools making their way up that nostril and down into my lung where samples would be taken. A broncoscopy
I can't pretend that it was an enjoyable experience. Not because of any pain or real discomfort but because the medical people and I had clear differences on the acceptable level of coughing and spluttering. I badly didn't want to make their life more difficult but did, or felt I did.
At least steel pipe up my nostril can be crossed from my bucket list.

Home now, around half past four. Valium wearing off. No beer tonight, apparently the mixture with the V would be too much .

So the results of today's test and the scans will be assessed by a group of skilled and clever people early next week. Clare and I will be invited to hear the results of their deliberations possible next Thursday.
Today's doctor thought we would find it was either lung cancer or lymphoma. We are being strict about not being tempted into google research until we have the diagnosis but nearly there now.

Thursday 26 November 2015

Waiting

Another good day yesterday, and today has started not too shabbily either.
I am sitting in my lounge, iPad on my lap, Led Zeppelin playing, appropriately on my Zeppelin dock. Best of all, for the first time on an ordinary working day,  in the 23 years since we moved in to this house a fire is burning in our large rustic grate.
Am I belatedly learning that special things don't have to be kept for special occasion, that they can make the ordinary and the mundane special?
Bloody hell, philosophy on a Thursday morning. Don't worry it won't become a habit. We all know where it can lead: POETRY, and there is very seldom any excuse for maudlin, half prepared poetry from middle aged men with too much time on their hands.
Anyway YESTERDAY.
I suspect yesterday will prove my easiest encounter with the NHS this winter. A CT scan. This asked no more of me than to lie still for a few minutes occasionally holding my breath while a motorised bed passed me through a big ring of , I'm not quite sure what? X-rays I guess.
I am told that pretty, or not so pretty, pictures of 1000 slices of vintage Peddie are now available for radiologists and oncologists to study. A plan will emerge, and I rather hope soon.
I have a confession too.
I am not very good at checking my mail. Business bills and cheques come in but are quite happy to rest on the table till I am ready to deal with them.
I was not yet prepared to deal with regular correspondence connected with an adventure in tumour science. When an appointment came in asking me to be in Dunfermline yesterday I filed it then relaxed. What I hadn't been quite prepared for was the chance that I might get a revised appointment for a day later and 20 miles closer.
When we got to Dunfermline there was a blank look when they searched for my appointment. But you know what they did? They fixed it. Quickly and efficiently. They even managed to do it 15 minutes earlier than my original time.
Black mark to Peddie, gold star to NHS!
And we have another appointment. Ominously entitled 'US guided biopsy neck'. I confess that this gave me a wee shiver of apprehension and a vision from a bunker in Texas as the American military launched a drone strike on my tender neck.
Apparently not. It is an ultrasound guided biopsy of something lurking in my neck. But I guess you wise and well informed people all knew that instantly.
Last night wasn't too shabby either. The Andrew Melville Hall Christmas dinner. With me on the top table (did I mention I married well).
Good food, generous supplies of wine and good company. Above all a lovely atmosphere as a couple of hundred students relaxed and enjoyed themselves for a few hours in that short gap between their course work ending and the exams beginning.
St Andrews University attracts the brightest and the best but even they will find it much harder to chart for themselves a rewarding route through life than those of us who were educated in the 1970s.
Judging by the chat and the buzz last night these kids will do OK.

Tuesday 24 November 2015

Health and Service

It is a beautiful day in West Aberdeenshire. I have done a little work, drunk much too much coffee and am sitting with iPad on my lap and my beautiful grand daughter chattering and laughing round about me.All is pretty much right with the world. So why am I so angry.
Not my health. I would much rather not have these problems but nobody's fault. I don't even have an evil and capricious god to blame, shit happens quite easily without the connivance of a higher power.

No it is the ongoing threat to our national health service that is fuelling my inner rage.

Now the NHS is a pretty simple concept. 
It is national so everyone from Shetland to Cornwall can expect the system to try to give them the same opportunity for excellence.
Obviously Health is at its centre. 
But so is Service. The NHS is a huge organisation but nobody works in there to get rich. 1.3 million staff report for work in return for a fair wage and the chance to help their fellow citizens.
Of all the things Britain has achieved nothing should make us more proud than this service which provides us with excellence at some of the lowest costs in the world.

And yet we have a government which has decided to dismantle the system. What is lacking, they have decided, is the ability of large international companies to take 15 or 20 % profit from the budget. Easily paid for by paying people less and by reducing staffing levels so that there are enough people on quiet days but perhaps not for peak days. Never mind there will be a private company to fill the gap. 

Our junior doctors have been driven to strike, not because they want six figure bonuses a la banking industry, but because they can't afford to pay for decent places to live and raise families, and because they see, day by day, the erosion of the ability of the NHS to provide the excellence we have come to expect. 

I am old enough to remember governments all the way back to Harold Wilsons labour government but this present Tory government seems to me unique in its single minded pursuit of their narrow self interest. 
David Cameron is uniquely worthy of contempt. His disabled son had huge help from the NHS but now Cameron is deliberately bringing about a situation where a similar child couldn't expect the same help. 
He shares with Hunt (had ever a talentless functionary such an appropriately rhyming name) the certainty that what he is saying is untrue and that he knows it is untrue.
They cast envious eyes on the American health system.
I am sure this is wonderful if you are wealthy enough to have full health insurance but they don't even try to provide excellence for the whole population. The tories wring their hands about our bloated 1.3 million staff. In the US there are 460000 working in the health insurance industry. Not Doctors, not nurses nor hospital porters. No these people check insurance forms. Perhaps they get a wee bonus if they can find a loophole to save their employers a bit of money.
Now the US health service is none of my business, they are (apparently) a democracy, their health is their business. BUT FOR PITIES SAKE DON'T CAST ENVIOUS EYES IN THAT DIRECTION.
Of course the heads of those insurance companies earn multimillion dollar salaries. Enough I suspect to make perfect sense to a certain type of Tory politician.

Sitting here the day before a major scan which will tell me which multi buy tumour pack I am hosting  makes me very much want for these young women and men to be happy and fulfilled.
So far I have had 2 assessments by junior doctors. The first was in Dundee by a startlingly attractive young woman. (OK, not strictly relevant but I am a middle aged man). She didn't claim to know everything but was happy to keep going back to her superior until they were both happy they had asked and answered the right questions. I found her humility and work ethic hugely comforting.
The second was at a TIA clinic in Kirkcaldy. A busy young man had time to send me round the hospital for tests and scans. Everywhere I went I found people with just enough time to make me feel cared for. When my day came to its end he sat us down and gave us the earth shattering news calmly and accurately.



Saturday 21 November 2015

Thoughts from home

It would be wrong to think that the house is a continuous festival of laughter with me performing funny walks in my ever so elegant pants. This is scary, perhaps unreal would be a better word. Next Wednesday's scan is what we are all looking forward to.  We, or at least I, are trying to balance hope and realism.
There are some strange reversals.
My weight peaked at just over 14 stone a couple of years ago. I went back to van driving and started to limit my chocolate intake and it gradually came down to 13 stone. Reducing beer intake was obviously an option but not one I have ever found it necessary to think seriously about.
This summer Clare started running and I went with her (did I mention what an extraordinary woman is Clare?) I found I really enjoyed the experience and my weight was edging to a reasonable target of 12 and a half stone by the beginning of August when my Achilles made the unilateral decision to lodge a protest and to insist that I took an extra 40 minutes in bed on running days.
This week my weight went down to 12 stone 4. The unwelcome little bastard passengers are clearly hungry sods. The house has never been so full of food. We have cheese from Mellis in St Andrews, biscuits from M and S. I can buy chocolate at will. And obviously beer restriction has seldom been further from the agenda.
There have been few days in the last 40 odd years when I haven't driven. Sadly it is the unanimous wish of the NHS, police Scotland and the Peddie family that I cease and desist from my piloting duties. There is a huge irony that, even with my precarious health status I am in less danger than I was every time I got behind the wheel of a car on a Friday or Saturday night in the second half of the 1970s.
What has been really nice over the last couple of weeks is talking to so many old and not so old friends. Once the bad news is out of the way there has been ample opportunity to chat and to remind ourselves of why we are friends.

Feeling fine. I tire quite quickly but am still working and finding a lot of fun in my daily grind.

Friday 20 November 2015

Pants

Good word, I'm sure you all agree.
Certainly a rational response to my predicament. Also relevant to the underwear shot of yours truly which I hope to attach to this posting. Come on, this is going on the Internet, porn had to raise its ugly head (well maybe I haven't gone quite that far)
My attitude to underwear has been historically careless. Buy cheap and wear to destruction. My diagnosis however comes at a high point of my underwear ownership.
ODDBALLS. Comfortable, secure and above all decent. Ideal for visits to medical facilities where clever women and men may want to check for whatever rubbish we find on Wednesday's investigations.
They also send 10% of their purchase price to fight testicular cancer. Follow them on Twitter to find countless pictures of fit young men and women (the ladies items are cut differently, I can't vouch for comfort but they do look attractive).
They also have a Movember pair. Please give generously to this movement. Thousands of men are suffering the embarrassment of dodgy moustaches during November. If we pay generously they will at least shave them before Christmas. The money they are raising is generally for Men's health and more specifically to research Prostate cancer. This took of my father, his best friend and his younger brother. Who knows it may be the wee shite at the base of my problem.
An international Men's day is clearly daft, but a bit of funding and publicity to encourage us to look after our health is really important.

Quiet few days on the medical front. A new anti eleptic drug started this morning. Time will tell how this reacts with my steroids and my antacids, both on reducing doses, and with the beer. I am still self medicating with carefully judged doses of Britains finest IPAs. You know it makes sense although when I mentioned it to my GP yesterday I am pretty sure a vision of me passing out nightly with a couple of gallons inside we flickered across here minds eye. No such luck.

I am going to spend more time than any of us would like in the company of junior doctors over the next month or 2. They badly need our support in their negotiations with the government. The Tory campaign against the NHS is founded on lies and greed and thickly layered with incompetence and dishonesty. Let's give the doctors all our support. Above all DON'T VOTE TORY.
Did I mention my new dentist?
A young woman in St Andrews. She fitted 3 x-Ray's, 2 fillings and a good clean into a half hour appointment on Tuesday. She didn't even seem shaken when I asked her advice on combining dental treatment with tumour ownership.
I've never had a lady dentist before but she seems great and if you have to have someone leaning over you closely soft skin and fair hair are much more pleasant than stubble

Tuesday 17 November 2015

Telling and hearing

Not the worst weekend of my life. Laughed a lot, cried a little, there may have been a little alcohol.
I also spoke to most of my favourite people, this could never be an unpleasant way to spend a few hours, even if the news I had to pass on was not good.
I haven't has much practice either at the passing on of bad news or of receiving it. I know a little more now. I know mostly that the closer people are in your life the closer you should have to have them when you pass on the news. Poor James was on the Seychelles, getting to know his dream job. Our phone call had us both in tears. Not that I am against tears, but they do bugger up the conversation if everyone is at it.
Highlight of the weekend would be lunch for 7 at Craig Millar @ 16 West End. Clare and I, Ben, Nikki and Elt. Prosecco, lots of laughs and truly delicious food. I highly recommend it for any celebration or displacement activity. Craig is a lovely man and a brilliant chef and his staff are as relaxed yet efficient as he is.
Slap up meals in the face of adversity are a bit of a Peddie family tradition. Almost exactly 30 years ago after a disastrous harvest when Peddie Inc lost over £150k Dad took us all to the Cellar for our tea. It was my first visit. I hadn't heard of Peter Jukes or Vivian or Alan Lunn. Or of the front of house person who would introduce all of them to me over the next 18 months. Clare was her name.
But back to the passing on of the news.
I very quickly learned that this sort of news is at least as hard to hear as it is to tell. I find it easier to chat in a pretty lighthearted way, dredge up old stories and giggle a bit. People being nice to me are a bit harder to take.
I spent quite a long conversation talking about Shiela.
Shiela Pollock was my cousin, a year older than me. Clever, beautiful and with a gift for making people happy. On Boxing Day 1986 she stole me away from a rather dull family party at Coal Farm with the suggestion that we have a drink or two at the 19th Hole in Elie.
She didn't mention that she had arranged to meet Clare (yes, still working at the Cellar) there. There is still some doubt as to whether she was setting us up for romance or whether she had agreed to bring a man with a van who would undoubtedly help to move house.
30 years later we are still happy, and I helped her flit at least twice that year.

This has been a difficult few days. We still have very little information. We have an appointment for a full body CT scan next Wednesday (25th) in Dunfermline. This should tell us exactly what we are up against and how we are going to combat it.
Meantime I am a bit under the weather, although whether it is the tumours, the steroids I am taking to reduce their swelling, the antacid I am taking to reduce gut rot or the carefully balanced intake of craft ale and red wine I am taking to induce a feeling of gentle euphoria which are causing this isn't exactly clear.
While I wish I hadn't had this happen it is a huge relief to know that I have exactly the right people around me family and friends have been equally generous in offers of help and beer. Good people.

Monday 16 November 2015

Neil was as positive as he could be during our afternoon together.
Neil is the doctor who I met at a TIA clinic on Thursday.
"I am certain it wasn't a stroke" sounded positive although I was hoping to hear what it was rather than what it wasn't.
Things were still going well when he came to "I think we have an explanation of your crash". Well if not well then neutral.
My day went rapidly downhill when his next words were "there are 2 tumours in your brain. The swelling around them causes electrical activity which in turn causes a seizure". The actual wording of the last sentence may not be accurate. Somehow the word tumour comes with a very powerful force field which makes it difficult to hear the words around it. Brain seemed to force its way through. Perhaps not the best word to put there, but is there a good word?
Small may have been in there but perhaps that is just my natural shiny optimism glowing through.

Short entry today. I have realised that this can't be about me alone. There is family. And such a family. I am a lucky sod, although thirst may have reduced my jam quotient just a bit.
I had 2 loving parents who worked their guts out to pass on a farming business to their 4 sons. 3 of those sons are my younger brothers. Not best friends but we talk and will help where they can.
There is a wife, who I met on Boxing Day 1986 and we have been together ever since. I have spent too little time trying to make her happy.
She came with 2 small children; a girl and a boy. They taught me to be a parent, I wasn't much of a stepfather but fortunately the bar is set pretty low. Think of Cinderella or Snow White. I was better than them.
Then there is our son. A wonderful young man. I won't say more about them yet. This will be their story too so they need to agree to be in it.
If these people were your family you would share my love and pride. This is a party I really don't want to leave.